Dementia

“Mr. Zane, that little old lady back there doesn’t even know her name. All she does is mumble, but she just sang I Saw The Light along with you.”

I have been blessed with a unique opportunity to sing at the nursing home as a part of my job. I have lost count of how many nursing homes I have visited. One of the most interesting and moving experiences I have had so far is singing in the memory care units. The memory care units I have visited have been in assisted living centers, not nursing homes, and are for residents who are dealing with memory loss due to Alzheimers or dementia. These units are usually locked down so the residents won’t wonder off and get lost. As I am being escorted through the halls, the workers always try to mentally prepare me for what I might expect as they punch in secret codes that take us deep into heart of the building. They don’t realize that that kind of stuff doesn’t bother me. I’ve probably been to more nursing homes than they have, and even preached at the Methodist church. I always keep my eyes closed while I’m singing anyway.

I’m not a licensed music therapist, but I have seen the power of music first hand. When the director of the unit walks up bawling after a concert and says things like, I’ve never seen that man talk before after the man just talked to me for three minutes. Or There is a little old lady back there that doesn’t even know her name. All she does is mumble, but she just sang I Saw The Light along with you. This kind of thing happens often. I cannot tell you what these people are diagnosed with, but I can tell you that there is a moment when the light comes on in their eyes. And it is a moving experience.

I often leave from these brief concerts thinking about those people, locked up in a wing of some multimillion dollar facility. Each person represents a heart wrenching story of children coming to grips with a parent whose mental state has deteriorated to an unrecognizable point. When did the children notice? Did their parent, who once possessed a sharp intellect and a profound pool of wisdom become foggy in their memory and erratic in judgment? Was there a sudden change in personality from a caring and compassionate nurturer to a mean and selfish miser, or was the change gradual? At what point did a brother call a sister and say, I think something is going on with Dad? And I wonder about perhaps the hardest conversation of all, Dad, we’re concerned about you, I think we need to get you some help.

I imagine a lot of that depends on the state of the relationship between children and parents. Disfunction, strained relationships, and estrangement is the sad reality for many families, and would make an already extremely difficult situation nearly impossible to navigate.

I have talked to quite a few people who have had this experience with a parent. They tell me that looking back they could remember odd changes in behavior from years before that now made sense. They talk about the parent leaving long before the body expired. And the sense of relief after their parents’ death, accompanied by a slight sense of guilt for being relieved. They also speak of the relief of knowing that the unkind words spoken to them were the disease and not the parent.

These are all the things I think about when I tune up my guitar in a memory care unit. I look for that light to come on. I try to sing a wide variety of hymns and gospel songs in hopes that one of them will resonate with a lingering memory behind a set of blank eyes. I also am painfully aware that I may not be able to reach someone if they have no memories of any of these spiritual songs. Or maybe the music has already died and there is no recalling them.

I sing anyway. I never know who is listening.

Neighbor, How Big is Your World?

I grew up in a small town, but for most of my adult life I’ve lived and worked in suburban areas. Having experienced both, I now live in the tension of wanting the business of a city and the quietness of the country. I imagine you could draw lines and each side could argue until Kingdom Come-I’m not trying to do that today- but I am going to endeavor to expose some aspects of human nature common to every one of us, but I tend to notice more in rural areas. Perhaps because it is hard to be anonymous in a small town where character and actions seem to be magnified. This is not an indictment of small town life, nor an endorsement of city life, but an honest attempt at addressing selfishness.

We have a couple of interesting words for selfish thinking: egocentrism-that is, the world revolves around me, and ethnocentrism-the world revolves around people like me. In a small town, it is easy to forget-or never even realize-that there is a world, indeed a much bigger world, beyond the city limits, or property lines. No matter how big the town, a small world is the breeding ground for self-centered thinking.

More people live in the city of Delhi, India than in the whole state of Texas.

I heard a lot about worldview in college. It was good for me, a country boy from central Alabama to learn things like American football is not even in the top 10 most popular sports in the world. That not everyone is an American. It challenged my worldview when I made friends with people who grew up in foreign places like Canada, Mexico, Thailand, Jamaica, South Africa, and California.

Jesus addresses egocentrism and ethnocentrism in the parable of the Good Samaritan. When we ask Who is my neighbor? We are asking, How big does my world really have to be?

Luke 10:25 And, behold, a certain lawyer stood up, and tempted him, saying, Master, what shall I do to inherit eternal life?

26 He said unto him, What is written in the law? how readest thou?

27 And he answering said, Thou shalt love the Lord thy God with all thy heart, and with all thy soul, and with all thy strength, and with all thy mind; and thy neighbour as thyself.

28 And he said unto him, Thou hast answered right: this do, and thou shalt live.

29 But he, willing to justify himself, said unto Jesus, And who is my neighbour?

More can be said of the story of the Good Samaritan than I am capable of writing. It is the story of humanity and I implore you to read it. The fall of man has left us in a cruel world, half dead, without help, until an outsider came along and saved us. Jesus did not have to show us mercy, but that is what neighbors do.

Luke 10:36 Which now of these three, thinkest thou, was neighbour unto him that fell among the thieves?

37 And he said, He that shewed mercy on him. Then said Jesus unto him, Go, and do thou likewise.

When I was a little boy I thought that my only neighbors were Rob and Karen, my next door neighbors. But there was a man in our church that challenged that mindset in the manner that he greeted people: “Howdy neighbor.” I remember my Dad preaching a message about this using the above text. I think about this whenever I read this portion of scripture. With a child’s understanding I began to realize every human on the planet is my neighbor.

This kind of broader thinking is often limited by human constructs that manifest as national pride, political ideologies, regional traditions, and even things as simple as sports team preference. It is hard for many people to break out of these constructs and see other people as humans, much less neighbors.

How we view and treat other people is linked to eternal life.

It is a question that we will be unable to avoid in the judgement: How big was your world?

Matthew 25:34 Then shall the King say unto them on his right hand, Come, ye blessed of my Father, inherit the kingdom prepared for you from the foundation of the world:

35 For I was an hungred, and ye gave me meat: I was thirsty, and ye gave me drink: I was a stranger, and ye took me in:

36 Naked, and ye clothed me: I was sick, and ye visited me: I was in prison, and ye came unto me.

37 Then shall the righteous answer him, saying, Lord, when saw we thee an hungred, and fed thee? or thirsty, and gave thee drink?

38 When saw we thee a stranger, and took thee in? or naked, and clothed thee?

39 Or when saw we thee sick, or in prison, and came unto thee?

40 And the King shall answer and say unto them, Verily I say unto you, Inasmuch as ye have done it unto one of the least of these my brethren, ye have done it unto me.